- WHAT IF THERE WERE NO HYPOTHETICAL QUESTIONS?
- WHY ISN’T THERE MOUSE FLAVOURED CAT FOOD?
- WHAT’S THE OLDEST TRICK IN THE BOOK?
- WHAT’S THE POINT IN A HOUSE DISPLAYING A SOLD SIGN?
- WHO COMES UP WITH ALL THOSE MARKETING SAYINGS “THINK OUTSIDE THE BOX” “BREAK THROUGH THE GLASS CEILINGS”?
- WHAT WAS THE BEST THING BEFORE SLICED BREAD? (A BAKER SAID IT WAS UNSLICED AND A HAND FULL OF FINGERS)
- WHEN SIGNWRITERS GO ON STTRIKE, HOW DO THEY MAKE THEIR POINT?
- WHO NAMES THE DULUX CHART?
- WHERE DOES MY LAP GO WHEN I STAND UP? TO LAPLAND?
- IS LAUGHTER THE BEST MEDICINE?
- CAN YOU MEND A BROKEN HEART?
- IS IT POSSIBLE TO FALL INTO A BARREL OF SHIT AND COME UP SMELLING OF ROSES?
- WHY DO SOCKS GO MISSING IN THE WASH?
- IS IT POSSIBLE TO BORE SOMEONE TO DEATH? DEPENDS HOW LONG THE DRILL IS
- IF LOVE IS BLIND WHY IS LINGEREE SO POPULAR?
- WHY DO WE TAKE A BREAK INSTEAD OF HAVE ONE? SURELY THE BREAK STAYS WHERE IT IS.
- IS THERE ANOTHER WORD FOR SYNONYM?
- WHY IS MARMALADE NOT CALLED ORANGE JAM?
- IS HONESTY THE BEST POLICY?
- WHERE IS THE MIDDLE OF NOWHERE / WHEN IS THE TWELFTH OF NEVER / WHERE IS THE BACK OF BEYOND?
- IF A DEAF MAN GOES TO COURT IS IT STILL CALLED A HEARING?
- WHY DO ROUND PIZZAS COME IN SQUARE BOXES?
- WHATS THE EASIEST JOB IN THE WORLD?
- IF YOU SEE AN ENDANGERED ANIMAL EATING AN ENDANGERED PLANT WHAT DO YOU DO?
- HOW MUCH ROOM DO YOU NEED TO SWING A CAT?
- IS IT POSSIBLE TO SELL YOUR SOUL?
- WHY DON’T SHEEP SHRINK WHEN IT RAINS?
- WHY DID HITLER HAVE THAT SILLY MOUSTACHE?
- WHAT IS THE PERFECT CRIME?
- HOW MUCH CAN I GET AWAY WITH AND STILL GO TO HEAVEN? (THIS IS THE ONE I WANT THE ANSWER TO)
I was expecting to arrive in a stark environment and live with black people in villages of straw huts. I thought animals roamed free and concrete and bricks were a thing of the past. My grandparents even told us we were going to a place that was so hot we wouldn’t use carpets or curtains. They told us we wouldn’t have to go to a proper school and we would learn in the open air at our village.
What is a socially crippling disabiity.
When explaining my condition in layman’s terms I use other better known conditions to describe the seriousness of this limiting and socially crippling disability. There are a few I can think of off the top of my head: Epilepsy, diabetes, Parkinson’s, Alzheimer’s, bipolar and the two horrid ones I am unlucky to have, Narcolepsy and Cataplexy. These awful conditions affect a persons entire life and many have no known source or cure.
What is this disability
Well firstly let me tell you that I don’t refer to this as a disability except in formal reference. I call it a condition, it is fairly well controlled but I still have days where even medication doesn’t help
My description of Narcolepsy is the uncontrollable need to sleep. Then there is the bad side of it, whenever I am sitting comfortably, quietly, warm, in a dark place, watching movies, sitting in waiting rooms, in church, at prize giving, etc….
I just black out. I don’t even feel tired but suddenly I “wake up”. I feel like I have been sleeping for hours but normally I wake suddenly before anyone even notices.
NHS defines Narcolepsy as a long-term (chronic sleep) disorder that disrupts a normal sleeping pattern. Symptoms of narcolepsy can be mild or severe, and include:
•falling asleep suddenly, without warning (known as ‘sleep attacks’) •excessive daytime sleepiness (EDS) •temporary muscle weakness when responding to emotions such as laughter and anger (cataplexy)
This I only experience when I am extremely tired or emotionally distressed. My legs just sort of buckle under me, I walk but they don’t co-operate. My arms jump, jerks I cannot anticipate or control. Its awful. This is worse than Narcolepsy but doesn’t happen as regularly.
Together with both of these conditions there is the vivid dreams. Dreams that are wild, colourful, creative, imaginative and distinct but very disturbing.
Lancet studies report Cataleptic attacks are a sudden loss of muscle control. This may be just a slight feeling of weakness, such as sagging facial muscles. The head might drop forward or worse, buckling of the knees resulting in total collapse of the person.
In severe cases, the patient can become completed paralysed, lasting for a few seconds to several minutes. During this time, the patient may seem to be unconscious, but can be fully awake and temporarily unable to move. A very frightening situation to be in. These attacks can be brought on by emotions: anger, surprise, fear or even laughter.
How did I get this condition?
I don’t know. I know that I first realised something was wrong during my first pregnancy when I was knitting baby jackets, I would fall asleep while knitting. My sister always said ” you are the only person I know who can knit and sleep at the same time.”
NHS reports that Narcolepsy is a relatively rare condition. The exact number of people who are affected by narcolepsy is unknown because the condition often goes unreported or is not diagnosed correctly.
It is estimated that narcolepsy affects 1 in 2,000 people worldwide, which is the equivalent of 25,000 people in the UK. It is also estimated that around 80% of people with the condition are undiagnosed.
Narcolepsy affects men and women equally. The condition usually begins during adolescence (the teenage years), although it can sometimes start earlier. Cases of narcolepsy that have started later (during middle age) have also been reported.
Narcolepsy does not usually cause any long-term physical health problems, but it can affect a person’s personal and professional life significantly.
I visited a doctor who was concerned enough to send me to a neurologist for an EEG. This is back in the arc ages before Sleep clinics and sleep study was known of. All sorts of wires attached to my head, I was placed in a dark room while the machine I was hooked up to measured whatever it measures.
Straight after the procedure the specialist told me I have Narcolepsy and sent me home. My doctor was very vague about the diagnosis and just gave me a prescription of medication advised by the specialist.
I was originally given a prescription for a very strong stimulant drug. My medical aid wouldnt pay for these as they were classed as dieting medication. I remember being on diet one time and taking amphetamines and feeling the same effect as the prescribed medication. I was able to buy this over the counter at more than 75% less that I paid for the other medication. So I started on a twenty year course of amphetamines – one a day did the trick, a half extra helped if I was really tired
Pathophysiological studies have shown that the disease is caused by the early loss of neurons in the hypothalamus that produce hypocretin, a wakefulness-associated neurotransmitter present in cerebrospinal fluid. The cause of neural loss could be autoimmune since most patients have the HLA DQB1*0602 allele that predisposes individuals to the disorder. Treatment is with stimulant drugs to suppress daytime sleepiness, antidepressants for cataplexy, and gamma hydroxybutyrate for both symptoms. Because narcolepsy is an under-recognised disease, it is important that general practitioners and other primary health-care workers identify abnormal daytime sleepiness early.
Lancet. 2007 Feb 10;369(9560):499-511. Narcolepsy with cataplexy. Dauvilliers Y, Arnulf I, Mignot E. Source Neurologie, CHU Montpellier Hôpital Gui-de-Chauliac and INSERM U888, Montpellier-France. firstname.lastname@example.org
How dangerous is Narcolepsy?
Narcolepsy is not dangerous in itself, but it is usually accompanied by Cataplexy. A cataleptic attack could happen at anytime in the home, at work or in leisure time or sport.
A sudden total collapse could be potentially life threatening, if operating or close to running machinery. Friends and work colleagues should be told exactly what to do if an attack does happen.
•Check the person is in safe position to recover away from other dangers, electrical appliances
•Make sure the person is as comfort as possible, checking there is no unnatural limb or body positions
•Allow the person to recover in their own time
It is your legal obligation to inform the Driver and Vehicle Licensing Agency (DVLA) about this medical condition
The problems created by this disorder can be social and financial. Some people may find a collapsed person disturbing and panic. Getting suitable employment after being diagnosed with this condition would probably be hard to do, as you should always inform an employer for insurance purposes.
Please Note:this information is not medical advice.
Always seek the advice of your doctor if you have a health problem.
Well here I begin to seriously blog.
I am going though this step by step and hopefully will come out the other end a better blogger.
I am going to write on a number of issues and bits n bobs which are close to my heart.
Im not sure that all subject will be of interest to a single audience. I will try to establish who prefers to read what and divide it up with more relevance later on.
I need to find sources of information to blog on. Information which links to and enhances what i am writing about and images to complement and brighten it all up.
I plan to read all comments and use criticism constructively. I hate being criticized and now I am putting myself out there to be open to it all…….so treat me gently.
I have read a bit about search engines and ads but my goodness, I am just starting, I wil pick it all up as I go along.
I want everyone who takes the time to read this blog to pay heed as I am going to send it back to you together with a new blog in a years time………………hopefully there will be a world of difference.
Since I am not feeling in top form today I am going to keep this brief.
I also have lots of reading to do.
Berry goodnight to all xxx
I was beginning to think I had OCD (obsessive compulsive disorder) with my compulsion for making lists. Then my ample behind landed in the proverbial butter when I found out about blogging. Lists, lists everywhere…I was in 7th heaven.
Everything I do or must remember to do goes on a list. I have so many lists my dad often jokes that I need a list of my lists.
So now im going to share with you some of the crazy and not so crazy lists I have made.
100 THINGS TO BE THANKFUL FOR LIST
This is a list I write when I am down in the dumps or feeling all sorry for myself. Basically its a list of things I have to be thankful for. You should try it, its amazing the things you think of. I went right from a loving family and good health to toilet paper and toenail clippers. You may think 100 things are a lot to think of but if you keep going you will probably be able to list much more than 100 things and its amazing how great you feel after doing this list. It sort of makes you realise you have so much to be thankful for that your being pretty self centred feeling sorry for yourself.
1000 THINGS TO DO BEFORE I DIE
This is sort of a bucket list but being such an indefinite time frame makes it a difficult list to compile. I have about five things written on the list. I suppose its due to the fact that i havent ever aspired to be famous, visit great places or meet important people. My daughter, on the other hand, is on her second bucket list. She has travelled to over 100 countries, visited most of the wonders and tourist sights in the world. She has sky dived, scuba dived, parasailed, bungeed, surfed, you name it………… just talking about it tires me out. At least with my wee little list I certainly don’t feel under any pressure to do anything weird and wonderful anytime soon.
This is a black book I have. I started to write down dates that I had disturbing dreams – trust me, there are plenty. Eventually I began writing small snyopsis of the dream. I was trying to find some pattern. No pattern evolved over the five years that I religiously kept this list going. I did find though was pretty disturbing – things I was dreaming of were happening. So guess what I did? I listed this, every time something happened that made me think of a dream Id had I would note in the dream book in another colour under the dream. I wrote the date and what had happened. I think I began to scare myself so I stopped writing the dreams down.
Sounds like my dream book In fact this was during the 10 years of my role of public relations practitioner (PRP) in the largest aircraft manufacturer of the southern hemisphere.
Communications, events planning, branding, visit groups to site and events planning all required the creative, stylish, organised approach of a talented PRP. The most important task though is to keep lists of activities planned to reach objectives From a tea party to planning of the Africa Aerospace and Defence show; from hosting student groups on factory visits right up to planning events for VIPs The key to a successful event is in the lists. One of the challenging events I planned was for a meeting between two heads of state. You cant even begin to imagine the amount of protocol that had to be adhered to in visits of this level.
I sell Avon products and have list of houses canvassed, catalogues delivered, returned, due, orders, customer details, etc. Thankfully I enjoy making lists.
DAILY THINGS TO DO
Many people make theses lists: daily tasks and shopping lists. Maybe I am a little neurotic here too, the shopping list is done under categories eg frozen food, tinned foods, fridge, freezer and fresh foods, cleaning products and personal hygiene.
Budgets and finances are lists I really dont like making – they are normally pointless because just as I get everything balanced something happens that messes it all up again. This is a real prozac trigger type of list for me.
WELL USED MOVING LIST
One of the most well used lists I made was a list of things to be done before moving from South Africa to Northern Ireland.
This has to be the most useless list I have ever made. A list of household chores, no one even cast a glance over it and I still struggle to do everything myself.
When I set out blogging I was in awe of some of the helpful bulleted blogs I came across. Lists so organised and well cross referenced, brightened up with relevant photographs. I was actually in awe of it all, still am.
HI, I am blogging under the pseudonym Cherryberrybear. I am a newbie blogger and look forward to your assistance along the way.
I am using this blog to learn and will be blogging about issues and subjects close to my heart. I am a very caring person with oodles of compassion and empathy for people.
I am very sensual, visual, audio, touch, scent and taste are the base of anything which rocks my world. Anything which appeals to my senses, moves me. These are things I know I can discuss easily with anyone. So I will discuss random things which stir me. Feel free to drag me off the soap box if I become too much.
The sense thats the most sensitive is the sixth sense…….a sense I believe I am in touch with.
Much of what I blog on this blog will be intangible, speculative and my personal opinion. I ask readers to keep an open mind, keep an open heart and remember that a sharing family is a caring family. So lets share our blogs and take from this what we can and give back the same or more.